My son Dimitri is now 13 years old, and just like any other 13 year old he has his friends and wants to hang out, meet girls and go to parties. When living with Thalassemia you still have to deal with the NORMS of life which is hard without any other stresses. Dimitri is the school clown, always the one making all the jokes and the one who most likely will get in trouble from the teacher because he was distracting the class. As a parent I have tried everything to guide him to change some things, but some times in life you just have to let your kids experience natural consequence which kill me. This morning I was thinking because after school he is going over to a friends house for a birthday party and it is a sleep over. So this morning I had to make sure he packed his blending cup for his medication, make sure he packed his Exjade (his medication), worry about if he will be careful of all the foods he shouldn't be eating and if he will be up all night and not wake up in the morning to take his medication.
THEN just to make my worries worse while I was at his school co-oping I past by the office and there he was in the office again. We just went through this last week. He got in trouble for disrupting others kids learning and being disrespectful to his class mates. I try to not pamper him or shelter him because of his disease even though it comes naturally to want to. I had the vice-principal come tell me what happened and I was up set and willing to discipline him by not allowing him to go to the sleep over. Then he went into tears about how the other kids said he did more than what truly happened. My heart began to break because I feel I have raised my kids to be honest with me and we have such a open relationship. That I didn't say anything and allowed him to continue his schedule. I have to learn to trust them that they will make the right decisions when it comes to their health and life. I want to protect them from every aspect but I have to let them learn and grow.
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